Wednesday, September 28, 2016

I feel exhausted all the time.   I sleep maybe three to six hours a night. It's not enough to function on. I'm so tired.

Tuesday, September 27, 2016

I feel very out of it.

Like my room is not my room.
It's not shaped right 
I didn't move or anything. I am in my bed in my room but it feels off.

I'm not sure if there is anything in my room tonight to make me feel off,  but there was something caught in the dreamcacher  yesterday. I knew something was there. It was confirmed and cleansed.

Every thing feels off.

Sleep is necessary and hopefully near.
And now that I think about it, there is probably something here. Attached to something in my room. That feeling, the knowing that there is something else here but it's not visible.

Saturday, May 28, 2016

Slept REALLY well last night

I cranked my sleep number bed up to 90 and had some Gatorade Gummies and then slept all through the night without interruption.  

I think I haven't been paying attention to how much salt I've been getting,  and have started eating Ramen a lot.

Hoping that enables my back to re-heal itself.

Some relief

Yet also the same amount of agony most of the time.
I'm thinking about asking my pain management Dr about the fake cannabis that's apparently legal here when the real stuff isn't.
I'm not sure what else to do.

Tuesday, May 24, 2016

Medication working?

So,  it seems like it's easier to go to sleep and easier to wake up the past few days, which is really nice.
Another increase is supposed to happen over the next few days where it's double the dose I started on and I hope it helps a lot.

My rheumatologist's office called and asked if I wanted them to find me a physical therapy place with a chiropractor in the same office that's covered by my insurance.  Of course I said yes to that and hope they have much better luck than I have had.

I have apparently been low on salt the past week because I really wanted Ramen and had two bowls of the salty stuff yesterday and one bowl today followed by pizza. I felt more alert both times so it's not like it was a useless craving.

I still feel very bleh,  though.   Just less so.

Sunday, May 22, 2016

New med increase

Tonight I take the new med at bedtime and then also when I wake up.

After a day or two of that, I think one of the doses will be double.

I can really tell when it's wearing off, so I'm hopeful about the increase and twice a day. I really hope it works. And it would be great if it works to the point where I am sure of it rather than questioning if things might be slightly better.

Anyway... Hopefully sleep.

Saturday, May 21, 2016

Fibromyalgia possibly, most likely...

My rheumatologist didn't actually give a diagnosis of fibromyalgia but she keeps saying that's the pain I'm feeling.
After reading medical sites and personal stories people have posted,  I've come to the conclusion that I've actually had it for a really long time and it was made worse after surgery rather than just happened then.   That would explain why it felt like the same thing but also a new layer to it.  

Sitting up straight feels like my back is burning,  but slumping clearly isn't helpful either.   This sucks.

The rheumatologist put me on gabopenton for nerve pain and muscle spasms and muscle knots and it's helping a bit.   I don't feel so exhausted.

I'm also supposed to go back to physical therapy and focus on everything instead of just my lower back...  However I'm skeptical about how often I'll be able to get there with a lack of transportation.

I'm hoping that things get better from here now that this medication enables me to move.